5 Year ANniversary

Today is the five year ANniversary (AN=acoustic neuroma) of my craniotomy/tumor eviction. Five years and there are still times when I experience moments of “did I really go through all of that?”

Five years post-op feels different. Life has obviously gone on, I am living my “new normal,” and yet in the last few weeks I have had emotions hit me that I thought I had already processed. It’s been a bit unsettling. However, instead of burying my feelings, I’ve been peeling back layers and riding the emotional waves as best I can. Thank you, therapy.

I know this anniversary is one that my husband is experiencing as well, just from a different perspective. He waited for hours in the hospital as the surgeons worked to remove the tumor from one of my cranial nerves. One surgery, two different experiences. I spent last night re-reading the blog posts that Jake wrote on the day of my surgery and the first few weeks of my recovery. They are a reminder to me of how he will do whatever he needs to do for his family and how he can always find a positive perspective – something that was a huge encouragement to me during the first year of my recovery.

I am not the same person I was when I was wheeled into the operating room 5 years ago. Physically, mentally, emotionally, I am different. I know people change over time, but the difference I feel is not something I can necessarily explain. Rather, I can feel the difference inside me – some of it is good and some I continue to work on refining. Again, thank you, therapy.

How do you honor the anniversary of a day that was not joy-filled? For me, it varies year to year. This year, Jake and I went to lunch at a local Vietnamese restaurant. The phở was delicious and the conversation was good for my heart. I process things by talking, and Jake is a very good listener.

This evening was filled with shuttling kids around and attending a school board meeting. (Because the world doesn’t stop for brain tumor surgery anniversaries.) I did make time earlier in the day to bake a chocolate vinegar cake (GF just for me). I know I’ve written about it before. It’s one frequently enjoyed by Jake’s extended family and one of my favorite desserts. I made it for this ANniversary back in 2019 and felt it was fitting to make it again this year. So maybe that’s the best way to remember the day – with cake.

Stay tuned…5 year post-op MRI is on Thursday. I’m praying for clear scans.

U of MN bball game

Jake and I took Shecklet #3 and Shecklet #4 to a Gopher Women’s basketball game this afternoon. The league the girls played in partnered with the Gophers to offer discounted tickets. The Gophers didn’t end up with a win, but it was still fun to be back in The Barn to watch the game. Afterwards, the girls got to go onto the court and have their picture taken with teammates who attended. We had friends capture a picture for us in our maroon and gold.

Winter bulletin board

I spent a few hours at the girls’ school updating another bulletin board today. Several teachers plan to have their kiddos color sweaters to help fill in the empty space. I can’t wait to see what it looks like when it’s complete.

2nd Snow Day of 2023!

Day 2 of school being cancelled for the girls and this time Shecklet #2’s district cancelled as well. Shecklet #1’s school won’t ever cancel due to weather since he’s online, but Wednesdays are not usually a heavy day for him, so he got to enjoy the snow along with his siblings.

I think the final total from this latest snowstorm ended up being around 14 inches.

The snow was perfect for packing, so naturally, Jake and the kids built a sledding track. And not just any sledding track, but one that has been talked about for years. They piled the snow up and over the back fence.

1st Snow Day of 2023!

We are expecting several inches and strong winds, so the girls’ school decided to declare a snow day. They were on break prior to Christmas when Shecklet #2’s school district did the same, so I’m guessing that’s part of the reason behind the cancellation. The boys on the other hand, both had to return to their classes.

After playing outside for a while, the girls came in an made fancy hot cocoa drinks.

Day 2 in STL – 2022

It rained again overnight and was still muggy when we got our day started. We planned to meet our friends at the City Museum at 12:30, which gave us just enough time to do a quick run through the STL Zoo. And when I say run, I’m only exaggerating a bit. My kids questioned my speed-walking on a couple of occasions as we navigated the strollers and animal seekers on the zoo paths.

On our way back to the truck we stopped outside the art museum. Shecklet #1’s current thoughts on his future career include being an electrician, so of course I had to have him stand next to the giant electrical plug!

The last time we visited the City Museum was September of 2016. Our kids have grown a bit since then and were able to venture off by themselves for a good portion of our time today. They came back with lots of stories about where they went and how much fun it was to explore on their own. The rooftop was closed (because it’s winter) but the outside was open for climbing. The kids spent a good portion of their time out there as well as inside in the caves.

After saying goodbye to our friends, we made a quick stop at the Cathedral to see our friend Fr. J. We are heading home tomorrow and he will be returning to school in Rome in a few days. I am so glad it worked out for us to get to see him!

It won’t be long and Shecklet #3 will be taller than her Godfather!

Day 1 in STL – 2022

This morning, Shecklet #4 and I went on a walk in search of decent coffee. Hotel coffee leaves much to be desired. I never thought of my self as a coffee snob, but the longer I drink it, the more particular I become. Perhaps that’s because I don’t like strong coffee and I miss my daily cup from the Keurig.

Our journey took us down the “Historic Main Street” of St. Charles, MO. The temps were pleasant (much nicer than back home) and it was a bit muggy from having rained overnight. After several blocks, we found a cute coffee shop where I ordered a vanilla latte and then we headed back to our hotel.

Our friend, (Shecklet #3’s Godfather) who is in STL for the Christmas season, met us at Immaculata Catholic Church and said Mass for our family and our friends, who were also in STL for the week. The church was beautiful. (Photo credit below goes to Shecklet #2 who asked to take photos of it after Mass.)

After Mass, we gathered in the rectory for lunch. Msgr. Gardin was kind enough to open his kitchen and dining room to our group. Fr. J. and Jake grilled steaks and burgers and Fr. J. prepared sea bass and sides. It was wonderful to get to share a meal with this great group! Sometimes God does show you why things don’t work out like you originally planned.

After lunch, Jake took the teenagers and tweens to the mall to see a movie – Avatar 2 in 3D. I went with our friends to the other side of the river (Troy, IL,) for a few hours. Before returning to MO, we drove down the highly-decorated street of our friend’s brother. The houses in the cul-de-sac go all-out and even have lights choreographed to music on a radio station. It is quite the sight!

After the movie ended, our group went to The Hill in search of a restaurant. We ended up at an authentic pizza place. Shecklet #2 said the pizza was some of the best he’s ever had. For dessert, we crossed the street and had gelato. Yum!

December 2022 road trip revived!

We loaded up the suburban this morning and pointed it south, with a final destination of STL programmed into the GPS.

The roads in southern MN and northern IA were particularly crummy and we considered turning around when we stopped for lunch in Clear Lake. However, we decided to give it until Cedar Rapids before we turned around. Jake said there were a few slick spots on overpasses, but overall the roads were mostly clear and we were able to drive at posted speeds.

We made a stop in Cedar Rapids for gas and to get shoes for the girls. We discovered about an hour or so into the trip that they only brought their crocs. This wouldn’t have been a huge issue if we weren’t planning some activities that require more secure footwear. Thankfully Target had what we needed.

We have a hotel booked in St. Charles for the duration of our stay.

The girls went for a quick swim before the pool closed for the night. I know I haven’t done much, just sat shotgun the whole day, but I’m looking forward to a good night’s sleep. 😴

Christmas 2022

Our plans for Christmas break changed from road trip to homebound thanks to snow, sub-zero wind chills, and poor road conditions.

We had originally planned on traveling to STL on 12/23 to visit Shecklet #3’s godfather, then on to GA to visit family, and finally to FL to visit friends. On 12/21, the house was minimally decorated for Christmas, I was caught up on laundry, and we had minimal items left in the fridge.

If you’re wondering why there is an “M” on the tree on the right, Shecklet #4 asked if we could get an ornament for the baby we lost between Shecklet #2 and Shecklet #3. (I had a very early miscarriage in August of 2009.) We never named the baby until #4 started referring to him as the “microscopic baby.” That turned into the formal name, Mike. So the “M” on the tree is in honor of our other little saint in heaven, Mike.

School ended up being cancelled for Shecklet #2 on 12/22, so we we considered getting on the road a day early. However, IA looked like this:

We made the adult decision to stay safe and not risk the stress or potential car trouble while in a “towing not recommended” zone. Our cancelled plans meant we were able to play games as a family, decorate sugar cookies, and shovel lots of snow.

We were also able to attend Christmas Eve Mass at our parish.

Jake shopped for heavy appetizers earlier in the day for our after-mass Christmas Eve meal.

Christmas morning we opened gifts and relaxed for a few hours. Shecklet #1 assembled his LEGO set, we hung Shecklet #4’s new cork board, and Shecklet #3 got to work figuring out classic rock melodies on her guitar. Shecklet #2 had to wait to try his new goggles.

We headed to Jake’s parents house around 3pm for dinner and opening gifts. The Shecklets enjoyed getting to see their cousins.

End of the basketball season 🏀

Shecklet# #3 and Shecklet #4 both had end of the season bball tournaments this weekend. Saturday they played at different locations, so Jake and I had to divide and conquer. He went to #4’s games and I went to #3’s. Both girls won both of their games, so we headed back to the gym (this time at the same location) on Sunday.

Shecklet #4 played first and her team played so hard! They put up numerous more shots than their competition, but the ball just didn’t want to go in! They ended up with a third place finish!

Shecklet #3’s team came into the tournament undefeated and ended undefeated! Their final game was very physical, but they played their game (good sportsmanship and great defense) and pulled away from the other team in the second half. Shecklet #3 earned four fouls! (Mrs. King from #2’s bball days would have been proud!)