I spoke with the first California surgeon (Dr. Friedman) yesterday afternoon (10/4.) His experience, coupled with a balance of confidence and empathy, helped calm the anxiousness I was feeling from last week’s appointments. He recommended the translab approach and put me at ease regarding the anatomy “challenges” that were brought up at Mayo. He also has a care coordinator (who had an AN tumor removed 7 years ago) who guides you through the entire treatment if you choose to work with them – I’ve spoken with her twice and she followed up with me via email today just to see how I’m doing with processing everything. Now I need to get the same documentation mailed to the 2nd doctor and wait for his call. If he has a similar recommendation to Dr. Friedman, I will feel much more confident in making my surgical choice and can move on to figuring out a timeline for treatment.
We shared the news of my diagnosis with the kids two nights ago. Their reactions were unique to each of them and I know they’re all processing things in their own way. I continue to have good days and sad/mad/frustrated days – there’s no way around it, tumors suck. I have a feeling that once I pick a doctor, location and set a date, things will really start to get “real.” I’m bracing myself for another wave of anxiety, but continuing to pray I navigate it with ease. I still need to be present as a wife and mom to five people who mean the world to me!
We took a day trip to Duluth to visit my Aunt Deb and Uncle Steve. We stopped at their townhouse and got a tour of their new place before heading the Bulldog Pizza for lunch. After filling up, we headed to the aquarium. We also took a walk down the pier – it was a beautiful blue-skied day!
When we returned to Deb and Steve’s house, we were treated to cookies and milk before heading for home. We were also loaded up with pasties and beef burgundy – dinner for the week!
A spring cleaning bug bit me today (late in the afternoon) and I completely emptied the girls’ closets. We pulled out things they had outgrown and passed them down accordingly. The things that no longer fit Shecklet #4 are bagged and ready to be given to a younger little girl. The reorganization of their closets gives me a sense of peace. I know that sounds strange, but it’s true. (Not sure how long that peace will last, but I have it for at least the night.)
The bins on the shelf are full of sentimental items. I go through them every so often and am trying to get past the “mental” part of the sentimentality. Truth is though, it’s hard. Everything has a memory. Jake helped me with a few items tonight and I’m really grateful for his input.
Next up – the boys’ closet 😬
I was able to get all of the kids in for dental cleanings today. Jake took the day off (for Shecklet #3’a birthday,) so he came with us as well. Four sets of teeth, four great reports! And #4 did awesome during her first check-up! She let Dr. Sharp check her teeth and the hygienist was able to do a complete cleaning.